Rare Disorders

CBEL >> 132 Rare Disorders Health sites, last updated on 31 March 2008

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VACTERL Association Personal Pages
- Ryans Life
- Aled Thomas Griffiths
- Schmidt Family Blog
- Alison Green
- Leslie Sue Large
- Hannahs Story
- Lily Hansen
- Benjamin Rockey
- Andrei Fagurel
- Zoe Lambert


VACTERL Association
- VACTERL Association Wiki
- VACTERL or VATER Association
- EA/TEF Family Support Connection
- The Vater Forum
- VACTERL Association Support Group
- VATER Association
- VATER Association
- VACTERL Network
- Tracheo-Oesophageal Fistula (TOF)
- Tef/Vater International

Progeria
- Progeria.ca: Too Young to be Old
- Progeria Project Foundation
- NORD: Progeria, Hutchinson Gilford
- University of Washington: Werner S...
- Progeria Research Foundation, Inc.
- Hayleys Progeria Page
- Progeria Family Circle
- NORD: Werner Syndrome
- Online Mendelian Inheritance in Ma...
- NCBI: Genes and Diseases
- Hutchinson-Gilford Progeria Syndro...
- Online Mendelian Inheritance in Ma...

Agnosia
- Agnosia
- Visual Agnosia
- Prosopagnosia
- Face Blind
- An Examination of Visual Agnosia
- Agnosia
- Prosopagnosia (Face Blindness)
- Cherubs
- Contact a Family
- Kindler Syndrome
- National Organization for Rare Dis...
- Nomid /Cinca
(part 2)
- Office of Rare Diseases
- Human Growth Foundation
- Fibrous Dysplasia Support Online
- Information Centre for Rare Diseas...
- European Organisation for Rare Dis...
- Tetrahydrobiopterin

Phenylketonuria
- Firstplay Dietary Foods LTD
- Genes and Diseases: Phenylketonuria
- PKU Exchange
- Pediatric Oncall
- PKU-Info.org
- Phenylketonuria
- Childrens PKU Network
- Medline Plus: Phenylketonuria
- National PKU News

Aicardi Syndrome
- Megan
- Aicardi Syndrome Foundation
- Medline Plus: Aicardi Syndrome
- Contact a Family: Aicardi Syndrome
- NINDS: Aicardi Syndrome
- National Library of Medicine: Aica...
- NINDS: Agenesis of the Corpus Callosum

Wegeners Granulomatosis
- Living with Wegeners Granulomatosis
- Wegeners Granulomatosis Info
- Merck Manual: Wegeners Granulomatosis
- Wegeners Granulomatosis, NIAID Fac...
- Wegeners Granulomatosis Site
- MedicineNet: Wegeners Granulomatosis
- Wegeners Granulomatosis
- Wegeners Granulomatosis (WG)
- Wegeners Granulomatosis Association
- WegenersNet

Cystinosis
- The Cystinosis Foundation UK
- Cystinosis Clinical Resources
- Cystinosis Central
- Cystinosis Research Foundation
- Cystinosis Research Network
- Cystinosis Foundation
- EyeRounds.org: Cystinosis
- Cornea and External Diseases - Cys...

Pemphigus
- International Pemphigus Foundation
- Pemphigus
- The Pemphigus and Pemphigoid Society
- Pemphigus Research

Moyamoya
- Pediatric Oncall
- Moyamoya Disease
- Moyamoya Disease
- NORD: Moyamoya Disease
- Moyamoya Disease
- E-Medicine: Moyamoya Disease
- NINDS: Moyamoya Disease

Rubinstein-Taybi Syndrome
- Rubinstein Taybi Syndrome Support ...
- The CaF Directory
- Special Friends Foundation
- Rubinstein-Taybi Syndrome

Degos
- Degos Patients Support Network
- NORD: Degos Disease
- EMedicine - Degos Disease :
- Doctors Doctor: Degos Disease

Erythromelalgia
- The Merck Manual: Erythromelalgia
- The Erythromelalgia Association
- NORD: Erythromelalgia
- Erythromelalgia (EM)

Pierre Robin Syndrome
- Pierre Robin Network
- Chases Story
- NORD - Pierre Robin Syndrome
- Contact a Family: Pierre Robin Syn...

Barth Syndrome
- Clinical Mass Spectrometry Laboratory
- NINDS - Barth Syndrome Information
- Barth Syndrome Foundation
- The Complete Barth Syndrome Homepage

Triploidy
- Indian Pediatrics
- Sabrian Lynn Cox
- Texas Department of State Health S...

Cleidocranial Dysplasia
- National Library of Medicine: Clei...
- A Natural History of Cleidocranial...
- MedicineNet.com: Cleidocranial Dys...

Alström Syndrome
- Alström Syndrome
- Alström Syndrome UK Support Group
- NORD - Alström Syndrome

Jacobsen Syndrome
- The Fragile WEB Site


Tyrosinemia
- NORD: Tyrosinemia, Hereditary
- Tyrosinemia

Melorheostosis
- Melorheostosis

Pemphigoid
- EMedicine: Bullous pemphigoid

Ollier Disease
- NORD: Ollier Disease


Cerebrocostomandibular Syndrome
- National Library of Medicine: cere...
- NORD - Cerebrocostomandibular Syndrome
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