Rare Disorders

CBEL >> 132 Rare Disorders Health sites, last updated on 31 March 2008

Pages A-D
Pages E-H
Pages I-O
Pages P-S
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Progeria
- Progeria.ca: Too Young to be Old
- Hayleys Progeria Page
- NORD: Progeria, Hutchinson Gilford
- Progeria Family Circle
- Progeria Research Foundation, Inc.
- University of Washington: Werner S...
- Progeria Project Foundation
- Online Mendelian Inheritance in Ma...
- NORD: Werner Syndrome
- Hutchinson-Gilford Progeria Syndro...
- NCBI: Genes and Diseases
- Online Mendelian Inheritance in Ma...

Pierre Robin Syndrome
- Chases Story
- Pierre Robin Network
- Contact a Family: Pierre Robin Syn...
- NORD - Pierre Robin Syndrome

Phenylketonuria
- Firstplay Dietary Foods LTD
- Childrens PKU Network
- PKU-Info.org
- PKU Exchange
- Phenylketonuria
- Pediatric Oncall
- National PKU News
- Medline Plus: Phenylketonuria
- Genes and Diseases: Phenylketonuria

Triploidy
- Indian Pediatrics
- Sabrian Lynn Cox
- Texas Department of State Health S...

Rubinstein-Taybi Syndrome
- Rubinstein Taybi Syndrome Support ...
- Rubinstein-Taybi Syndrome
- Special Friends Foundation
- The CaF Directory

Melorheostosis
- Melorheostosis

Jacobsen Syndrome
- The Fragile WEB Site

Wegeners Granulomatosis
- Living with Wegeners Granulomatosis
- MedicineNet: Wegeners Granulomatosis
- Merck Manual: Wegeners Granulomatosis
- Wegeners Granulomatosis
- Wegeners Granulomatosis (WG)
- Wegeners Granulomatosis Association

Wegeners Granulomatosis (part 2)
- Wegeners Granulomatosis Info
- Wegeners Granulomatosis Site
- WegenersNet
- Wegeners Granulomatosis, NIAID Fac...

Ollier Disease
- NORD: Ollier Disease

Pemphigus
- International Pemphigus Foundation
- The Pemphigus and Pemphigoid Society
- Pemphigus
- Pemphigus Research

Agnosia
- Prosopagnosia (Face Blindness)
- Visual Agnosia
- Agnosia
- Agnosia
- An Examination of Visual Agnosia
- Face Blind
- Prosopagnosia

VACTERL Association Personal Pages
- Alison Green
- Andrei Fagurel
- Benjamin Rockey
- Hannahs Story
- Leslie Sue Large
- Lily Hansen
- Ryans Life
- Schmidt Family Blog
- Zoe Lambert
- Aled Thomas Griffiths

Tyrosinemia
- NORD: Tyrosinemia, Hereditary
- Tyrosinemia

VACTERL Association
- The Vater Forum
- VATER Association
- EA/TEF Family Support Connection
- Tef/Vater International
- Tracheo-Oesophageal Fistula (TOF)
- VACTERL Association Support Group
- VACTERL Association Wiki
- VACTERL Network
- VACTERL or VATER Association
- VATER Association
- Cherubs
- Contact a Family
- European Organisation for Rare Dis...
- Fibrous Dysplasia Support Online
- Human Growth Foundation
- Information Centre for Rare Diseas...
- Kindler Syndrome
- National Organization for Rare Dis...
- Nomid /Cinca
- Office of Rare Diseases
- Tetrahydrobiopterin

Alström Syndrome
- Alström Syndrome
- Alström Syndrome UK Support Group
- NORD - Alström Syndrome

Barth Syndrome
- Barth Syndrome Foundation
- Clinical Mass Spectrometry Laboratory
- NINDS - Barth Syndrome Information
- The Complete Barth Syndrome Homepage

Aicardi Syndrome
- Aicardi Syndrome Foundation
- Contact a Family: Aicardi Syndrome
- Medline Plus: Aicardi Syndrome
- Megan
- National Library of Medicine: Aica...
- NINDS: Agenesis of the Corpus Callosum
- NINDS: Aicardi Syndrome

Cerebrocostomandibular Syndrome
- National Library of Medicine: cere...
- NORD - Cerebrocostomandibular Syndrome

Erythromelalgia
- Erythromelalgia (EM)
- NORD: Erythromelalgia
- The Erythromelalgia Association
- The Merck Manual: Erythromelalgia

Moyamoya
- E-Medicine: Moyamoya Disease
- Moyamoya Disease
- Moyamoya Disease
- Moyamoya Disease
- NINDS: Moyamoya Disease
- NORD: Moyamoya Disease
- Pediatric Oncall

Pemphigoid
- EMedicine: Bullous pemphigoid

Cleidocranial Dysplasia
- A Natural History of Cleidocranial...
- MedicineNet.com: Cleidocranial Dys...
- National Library of Medicine: Clei...

Cystinosis
- Cornea and External Diseases - Cys...
- Cystinosis Central
- Cystinosis Clinical Resources
- Cystinosis Foundation
- Cystinosis Research Foundation
- Cystinosis Research Network
- EyeRounds.org: Cystinosis
- The Cystinosis Foundation UK

Degos
- NORD: Degos Disease
- EMedicine - Degos Disease :
- Degos Patients Support Network
- Doctors Doctor: Degos Disease

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